This disease should be referred to as a pain in the ass. A huge, heavy and absurd pain in the ass. I was born photosensitive, they say. Photosensitive means that I cannot be in the light otherwise kaput. “Premature skin aging and alterations in the DNA repair”. Something that can drive you crazy. You have to invert any natural parameters: sleep during the day and live during the night. And for some years it can go pretty well, years that may be the best ones, but after a while you become insane and overstretched.